KIDNEY WALES ASK CHIEF MEDICAL OFFICER IN WALES THE QUESTION
On the state of public health: Annual report of the Chief Medical Officer 2006 : Department of Health - Publications and statistics click
Many of you ask about the policy for the UK. The Chief report of the Chief Medical Officer in England caused a stir on presumed consent this Summer. Thousands registered on line as a result of the debate in the media. It was headline news on the BBC.
Kidney Wales has asked the Dr Tony Jewell the Chief Medical Officer in Wales for his views as he has not entered the debate and has been silent.
Kidney Wales will lobby the Assembly to change the law in Wales on this.
Thursday, August 30, 2007
Friday, August 24, 2007
Launch of Campaign date and BMA support for Presumed Consent
Kidney Wales met media, policy and legal advisers of the British Medical Council (the BMA) this week to discuss the Campaign.
The BMA has been lobbying the Assembly and campaigning for presumed consent for many years.
News release Edwina meets Kidney Patients
News release
Change in meeting date with Health Minister Edwina Hart AM MBE . Kidney Patients in Wales will now meet Edwina Hart on 5th of September 2007 in Swansea.
The meeting will feed into the comments to be published in the People Like Us launch to made public next week.
Change in meeting date with Health Minister Edwina Hart AM MBE . Kidney Patients in Wales will now meet Edwina Hart on 5th of September 2007 in Swansea.
The meeting will feed into the comments to be published in the People Like Us launch to made public next week.
How to become a donor
How to become a donor
Organ donation: the gift of life
Already carry a card?
Carrying the card is a great start, but to be a registered organ donor you need to join the NHS Organ Donor Register.
Today more than 9,000 people in the UK need an organ transplant that could save or dramatically improve their life. Most are waiting for a kidney, others for a heart, lung or liver transplant. But less than 3,000 transplants are carried out each year.
Transplants are one of the most miraculous achievements of modern medicine. But they depend entirely on the generosity of donors and their families who are willing to make this life-saving gift to others.
Organ donation: the gift of life
Already carry a card?
Carrying the card is a great start, but to be a registered organ donor you need to join the NHS Organ Donor Register.
Today more than 9,000 people in the UK need an organ transplant that could save or dramatically improve their life. Most are waiting for a kidney, others for a heart, lung or liver transplant. But less than 3,000 transplants are carried out each year.
Transplants are one of the most miraculous achievements of modern medicine. But they depend entirely on the generosity of donors and their families who are willing to make this life-saving gift to others.
Friday, August 10, 2007
People Like Us Campaign- An Introduction
The Kidney Wales “People Like Us” + Campaign
Kidney Wales is celebrating 40 years of working for kidney patients and their families this year. The purpose of the “People Like Us” Campaign is to:
Strengthen and unify the voices of thousands with kidney disease;
Provide a platform of patient and carer families to ensure messages get through to the elected members, government agencies and others;
Present an accurate and compelling picture for the general public by showing the true human faces of kidney disease in Wales.
“People Like Us” covers:
Patient and Family Groups;
Donor Family Groups;
and Transplant Recipients;
… and will campaign to ensure that people with kidney disease receive the best care possible by seeking changes and actions in renal health care rather than tomorrow’s promises.
The “People Like Us” Campaign will be launched in September 2007 in venues across Wales.
Kidney Wales is celebrating 40 years of working for kidney patients and their families this year. The purpose of the “People Like Us” Campaign is to:
Strengthen and unify the voices of thousands with kidney disease;
Provide a platform of patient and carer families to ensure messages get through to the elected members, government agencies and others;
Present an accurate and compelling picture for the general public by showing the true human faces of kidney disease in Wales.
“People Like Us” covers:
Patient and Family Groups;
Donor Family Groups;
and Transplant Recipients;
… and will campaign to ensure that people with kidney disease receive the best care possible by seeking changes and actions in renal health care rather than tomorrow’s promises.
The “People Like Us” Campaign will be launched in September 2007 in venues across Wales.
.
(Pictured Allison John advertising the HSBC KIDNEY WALES 10 and 2k RACE AND FUN RUN)
The “People Like Us” Campaign is led by Kidney Wales Foundation and the Welsh Kidney Patients Association and led by Allison John who has experienced dialysis and had a liver, heart, lung and kidney transplant and is the first person in the UK to do so.
E mail Allison at allison@kidneywales.com
Allison John's Campaign Diary
DIARY OF CAMPAIGN
Allison's Campaign Diary will start today as she convenes the Meeting for the Patients with the Minister for Health Edwina Hart .
Allison's Campaign Diary will start today as she convenes the Meeting for the Patients with the Minister for Health Edwina Hart .
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Above photograph is Allison John at the National Assembly for Wales with Presiding Officer Lord Dafydd Elis Thomas AM and Ann Lloyd AM.
Thursday, August 9, 2007
PEOPLE LIKE US CAMPAIGN
This is the offical blog for the People Like Us Campaign due to be launched on 20th of September 2007 and presented to the Minister for Health Edwina Hart AM MBE
The blog will inclde the diary of Allison John the Leader of the Campaign.
The blog will inclde the diary of Allison John the Leader of the Campaign.
KW News
Click for more information
What was the Petition about in the National Assembly for Wales ?
Allison John presented the Presiding Officer Lord Dafydd Elis Thomas AM and the new Petitions Committee Chair Val Lloyd AM with a Petition to the National Assembly of Wales to increase the funding for more people in Wales to register on the Organ Donor Register.
Present were Mike German AM and Andrew RT Davies AM who are on the Petitions Committee and John Reever of the Welsh Kidney Patients Association and Trustees of Kidney Wales.
Lord Dafydd Elis Thomas said “I am delighted to accept this petition from Kidney Wales . It’s very pleasing that we are receiving Petitions under our new system and the Petitions Committee has been set up to look at petitions and decide how to proceed with them. For the first time, members of the public and organisations/charities such as Kidney Wales will not only be able to petition the National Assembly and ask for action to be taken in those areas of policy for which the Assembly is responsible, but the Assembly will be required to act on the petition, if it is within the powers of the Assembly. We are also carrying out an open consultation to invite people to give their ideas about how we can make this new system work best. We want it to be open, responsive, efficient and effective, and I urge people to look at our website and respond to the consultation.”
What was the Petition about in the National Assembly for Wales ?
Allison John presented the Presiding Officer Lord Dafydd Elis Thomas AM and the new Petitions Committee Chair Val Lloyd AM with a Petition to the National Assembly of Wales to increase the funding for more people in Wales to register on the Organ Donor Register.
Present were Mike German AM and Andrew RT Davies AM who are on the Petitions Committee and John Reever of the Welsh Kidney Patients Association and Trustees of Kidney Wales.
Lord Dafydd Elis Thomas said “I am delighted to accept this petition from Kidney Wales . It’s very pleasing that we are receiving Petitions under our new system and the Petitions Committee has been set up to look at petitions and decide how to proceed with them. For the first time, members of the public and organisations/charities such as Kidney Wales will not only be able to petition the National Assembly and ask for action to be taken in those areas of policy for which the Assembly is responsible, but the Assembly will be required to act on the petition, if it is within the powers of the Assembly. We are also carrying out an open consultation to invite people to give their ideas about how we can make this new system work best. We want it to be open, responsive, efficient and effective, and I urge people to look at our website and respond to the consultation.”
The Petition will now proceed and get the attention of the Health Committe
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