Edwina Hart AM speaking in the Assembly as Health Minister "...the People Like Us campaign. It has been an exceptionally responsible campaign that has tried to highlight what practical actions we can take to improve the quality of life of patients with renal problems. I have responded directly to People Like Us about the issues that have arisen from its document and I would be happy to share that with Assembly Members, because it will indicate my thinking. I have also recently met representatives of the campaign. It has been proactive in making arrangements for me to meet with other voluntary organisations with an interest in the whole issue of donors. It is important that we have an integrated campaign about donors."
David Melding AM"I commend the People Like Us campaign on raising these issues in a constructive way. It has said a few things to which you may want to respond at some point, Minister. It has argued for one organisation to commission services across Wales, thereby ensuring a consistent standard. I am not sure what your response to that would be, Minister, but it is worthy of consideration. Such a model could meet many of the concerns that people have. Also the need for better preventative work, and the management of chronic disease—kidney disease in this case—needs to be emphasised too. "
JENNY RANDERSON AM "... I commend the work of the Kidney Wales Foundation and the People Like Us campaign, which has worked hard to put this issue on the agenda. It is clear that it has succeeded in stage one of its campaign."
EDWINA HART AM "I concur with your comments about the Kidney Wales Foundation, which has done an excellent job in highlighting these issues to the public and to us as politicians. It is to be commended for that, because that is the role of the voluntary sector. The good thing is that the voluntary sector can see quite clearly that it has been successful in helping Government to look at their policies. That is a plus for the Government and for the working of the National Assembly, which is an important point to note."
Showing posts with label ASSEMBLY DEBATES. Show all posts
Showing posts with label ASSEMBLY DEBATES. Show all posts
Sunday, December 23, 2007
Wednesday, October 3, 2007
Petition Paper Evidence from KW Foundation for Committee
PET(3)-03-07 : Paper 1 : Kidney Wales Foundation (PDF, 83-3KB) click for evidence
Pictured Andrew RT Davies new AM and Member of Committee
The Kidney Wales Foundation welcomes the opportunity to provide evidence to the new Petitions Committee on the vital issue of organ donation and transplantation. This invitation comes at a most opportune point as we launch our People Like Us Campaign. “People Like Us” is a radical patient centred vision for kidney services in Wales with a view to making Wales a world class provider of renal services. Over 400 people are waiting for a transplant in Wales and a crisis in organ supply faces Wales as demand increases year by year. Our campaign aims for a new transplant strategy based on: introducing legislation in Wales for presumed consent; working with partners to deliver a substantial increase in donors; and delivering a new dedicated transplant unit for Wales.
Pictured Andrew RT Davies new AM and Member of Committee
The Kidney Wales Foundation welcomes the opportunity to provide evidence to the new Petitions Committee on the vital issue of organ donation and transplantation. This invitation comes at a most opportune point as we launch our People Like Us Campaign. “People Like Us” is a radical patient centred vision for kidney services in Wales with a view to making Wales a world class provider of renal services. Over 400 people are waiting for a transplant in Wales and a crisis in organ supply faces Wales as demand increases year by year. Our campaign aims for a new transplant strategy based on: introducing legislation in Wales for presumed consent; working with partners to deliver a substantial increase in donors; and delivering a new dedicated transplant unit for Wales.
Monday, October 1, 2007
ASSEMBLY DISCUSS KIDNEY CAMPAIGN NEEDS AND HEALTH COMMISSION WALES
Debate Wednesday 26th of September 2007 in the National Assembly of Wales (Plenary Session)
Dai Lloyd AM said "...a meeting of the Wales
cross-party kidney group was held here last
night, which many of us attended. It has
become clear that there is an urgent need to
increase the number of dialysis units in
Wales. That need has been urgent for years
now. There is also an urgent need to establish
a transplant unit at the University of Wales
Hospital in Cardiff. That need has also
existed for years. Both of those decisions are
within the ambit of Health Commission
Wales, but nothing has happened, and people
are suffering. The Minister will be aware
of an active kidney patients’ campaign to
highlight the urgent need to improve the
number of services available, particularly
with regard to dialysis, but we also need a
new transplant unit in UHW.
HCW has known about all of this for several
years and there appears to be no movement
whatsoever. No-one is pretending that the
commissioning of specialised services is
simple or straightforward, particularly within
funding constraints, but we need to see and
feel that there is ability and that specialised
services are being developed, and that HCW
is not always responding to a situation where
it has to save money, or it feels that it has to
respond to some sort of funding crisis. It is
there to serve patients, and kidney patients in
particular need to see movement on dialysis
and on transplants.
...In conclusion, I hope that the review into
Health Commission Wales can move the
situation forward with regard to service
provision for specialist services for the
people of Wales. At the moment, kidney
patients, the morbidly obese, and various
other specialties are suffering because of a
lack of provision; that certainly needs to be
addressed."
cross-party kidney group was held here last
night, which many of us attended. It has
become clear that there is an urgent need to
increase the number of dialysis units in
Wales. That need has been urgent for years
now. There is also an urgent need to establish
a transplant unit at the University of Wales
Hospital in Cardiff. That need has also
existed for years. Both of those decisions are
within the ambit of Health Commission
Wales, but nothing has happened, and people
are suffering. The Minister will be aware
of an active kidney patients’ campaign to
highlight the urgent need to improve the
number of services available, particularly
with regard to dialysis, but we also need a
new transplant unit in UHW.
HCW has known about all of this for several
years and there appears to be no movement
whatsoever. No-one is pretending that the
commissioning of specialised services is
simple or straightforward, particularly within
funding constraints, but we need to see and
feel that there is ability and that specialised
services are being developed, and that HCW
is not always responding to a situation where
it has to save money, or it feels that it has to
respond to some sort of funding crisis. It is
there to serve patients, and kidney patients in
particular need to see movement on dialysis
and on transplants.
...In conclusion, I hope that the review into
Health Commission Wales can move the
situation forward with regard to service
provision for specialist services for the
people of Wales. At the moment, kidney
patients, the morbidly obese, and various
other specialties are suffering because of a
lack of provision; that certainly needs to be
addressed."
In Response:
Minister for Health Edwina Hart AM :
Minister for Health Edwina Hart AM :
"The issues that you have
raised are what influenced my decision to
have a review of Health Commission Wales.
Some of the issues around obesity services
and anorexia—on which I know many
Members have had correspondence with
regard to provision and the need for
services—across Wales have been
particularly important, as have those relating
to kidney services. When you think about
what can be done these days through dialysis
and how you need ease of access to dialysis,
that is certainly an important area to look at.
raised are what influenced my decision to
have a review of Health Commission Wales.
Some of the issues around obesity services
and anorexia—on which I know many
Members have had correspondence with
regard to provision and the need for
services—across Wales have been
particularly important, as have those relating
to kidney services. When you think about
what can be done these days through dialysis
and how you need ease of access to dialysis,
that is certainly an important area to look at.
However, you are quite right—if this is the
commission of specialist services it has to be
about the commissioning of specialist
services, that is, how they can work properly
across Wales in rural and urban areas, and
ease of access for patients. Those should be
the criteria by which the commission deals
with it.
....However, I take on board your points, Dai,
and some of those key areas certainly
influenced my decision to have a review.
Presiding Officer, in light of the interest in
my statement and the review of Health
Commission Wales, I might have a look
again at my terms of reference to see whether
I can beef them up a little to take into account
Members’ views today."
commission of specialist services it has to be
about the commissioning of specialist
services, that is, how they can work properly
across Wales in rural and urban areas, and
ease of access for patients. Those should be
the criteria by which the commission deals
with it.
....However, I take on board your points, Dai,
and some of those key areas certainly
influenced my decision to have a review.
Presiding Officer, in light of the interest in
my statement and the review of Health
Commission Wales, I might have a look
again at my terms of reference to see whether
I can beef them up a little to take into account
Members’ views today."
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